Please get in touch with Sally ahead of a meeting and let her know if you intend to go along so she can keep track of numbers.
Sally's link with alopecia:
Sally first started losing her hair 22 years ago with a small patch that grew back. Gradually over the next 15 years, patches came and went, but hair reduced overall. Then in 2010, her hair stopped growing and the bald patches became greater than ever. In December 2010, a photo taken at a colleagues retirement "do" made her realise that she could no longer cover up the bare patch and she got her first wig. It took 6 months to get her first NHS wig, but in the meantime she struck lucky with a wig consultant in Cardiff who helped her initially and found the "right one" at the first meeting. Sally now has alopecia universalis.From Sally:
"Welcome to the Bath, Bristol and Wiltshire support group. We were formed in 2012, and I took over as group coordinator in 2014. We cover a wide geographical area from North Somerset, across Bristol and Bath and into Wiltshire, so we alternate meetings between Bristol/Bath and Swindon. Meetings are informal and new members are always given the chance to tell us their story, if they want to, or to just listen if they prefer. The Swindon meetings are supported by a Trichologist who gives members free advice and cakes! Bristol/Bath meetings are held in a variety of locations including member's homes. Members say the best thing about the group is meeting people who know exactly how they feel and understand what they are going through. I hope to see you at a meeting soon."Need Advice or Support Outside of the Group Meetings?
main role of support group leads is to facilitate, and answer questions
about, the group meetings. Some may offer additional support and you
can see what is on offer from Sally below:
- Sally has her telephone number advertised and is happy to provide a listening ear via telephone call if someone phones after 6pm weekdays or after 10am at weekends.
- Sally is happy to receive support questions from those in her local area and
will answer to the best of her ability based on her own knowledge and
experiences. Please be aware that any questions Sally is unable to
answer will be sent on to staff at Alopecia UK.
note that all of our support group leads are volunteers and do this in
their spare time. As such please allow up to a week for replies to
emails. The majority of group leads are not trained health
professionals and will be helping from the standpoint of being someone
who is affected by alopecia themselves and wanting to reach out and help
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?
you have any 'Suggestions, Comments, Compliments or Complaints' about
any of the Support Groups listed on the Alopecia UK website then you can
let us know by clicking here
Feedback is always appreciated. The information will be used by
Alopecia UK to to help us understand what works and what doesn't in
order that we can support and advise group leads more effectively and
develop the Alopecia UK support group network.