Please get in touch with Sheila and Clare ahead of a meeting and let them know if
you intend to go along so that they can keep track of numbers.
Sheila's daughter, Amaliah, has Alopecia Universalis. Amaliah has had alopecia areata for nine years, since she was five years old. Three years ago this developed in to alopecia universalis. Sheila says, "Although I will be running the group my daughter will be taking more of the charge roll. We have both grown in understanding alopecia and already talk to other parents and newly diagnosed young people and feel we have a lot to offer".From Clare:
Clare's daughter has alopecia. Clare says, "When my daughter first developed alopecia, we tried to support her as much as possible but she found it very difficult to come to terms with her hair loss. The turning point for her was when she attended the Alopecia UK event at Alton Towers and was able to spend time with other young people who were going through the same experiences as her. This group will allow teenagers to meet regularly and talk about the things that matter to them.Need Advice or Support Outside of the Group Meetings?
main role of support group leads is to facilitate, and answer questions
about, the group meetings. Some may offer additional support and you
can see what is on offer from both below:
- Sheila and Clare both have their telephone number advertised and are happy to provide a
listening ear via telephone call if someone phones (between the hours of 3pm-8pm for Sheila and 6pm-9pm for Clare).
- Both are happy to receive support questions via email from those in their local area and
will answer to the best of their ability based on their own knowledge and
experiences. Please be aware that any questions Sheila and Clare are unable to
answer will be sent on to staff at Alopecia UK.
note that all of our support group leads are volunteers and do this in
their spare time. As such please allow up to a week for replies to
emails. The majority of group leads are not trained health
professionals and will be helping from the standpoint of being someone
who is affected by alopecia themselves and wanting to reach out and help
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?
you have any 'Suggestions, Comments, Compliments or Complaints' about
any of the Support Groups listed on the Alopecia UK website then you can
let us know by clicking here
Feedback is always appreciated. The information will be used by
Alopecia UK to help us understand what works and what doesn't in
order that we can support and advise group leads more effectively and
develop the Alopecia UK support group network.