Meetings are informal and a chance to meet and talk to others with alopecia, their families and friends. The meetings consist of just general chat if that's what everyone wants, or alternatively suggestions are welcome, for example if you would like us to talk about particular issues to do with work, dating, wigs, causes, improving attitude of medical profession etc then we can do.
Please get in touch with Marie and Hayley ahead of a meeting and let them know if you intend to go along.Marie's link with alopecia:
Marie has had alopecia since she was 24. It started as alopecia areata and her patches varied in size over a number of years. Later on it developed into alopecia totalis. For 16 years she chose to wear a wig to hide her condition. She made the decision to show all the world on her 40th birthday and has since spent every day wigless, only wearing a hat to protect her head from the sun or the cold and spreading awareness of alopecia. Although running the Birmingham group, Marie is actually from Coventry and travels into Birmingham to attend the meetings.From Marie and Hayley:
"Welcome to the Birmingham & West Midlands Support Group. We meet every two months usually in Birmingham City Centre as this is the most central location for members of the group but accessible by public transport. Our members suffer from a variety of alopecia, some are new sufferers, and some have had the condition quite some time. Meeting up to talk, discuss ideas and support each other is valuable to helping members deal with their condition. We look forward to welcoming anyone that would like to attend our meetings. We can honestly say that after attending a meeting for the first time we always hear positive feedback about how good and useful it has been to meet other people that actually understand the condition."Need Advice or Support Outside of the Group Meetings?
The main role of support group leads is to facilitate, and answer questions about, the group meetings. Some may offer additional support and you can see what is on offer from Sue below:
- Marie and Hayley do not have a telephone number advertised but they are happy to receive a phone call and provide a listening ear at a time arranged via email
- Marie and Hayley are happy to receive support questions from those in their local area and will answer to the best of their ability based on their own knowledge and experiences. Please be aware that any questions they are unable to answer will be sent on to staff at Alopecia UK.
Please note that all of our support group leads are volunteers and do this in their spare time. As such please allow up to a week for replies to emails. The majority of group leads are not trained health professionals and will be helping from the standpoint of being someone who is affected by alopecia themselves and wanting to reach out and help others.
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.
Suggestions, Comments, Compliments, Complaints?
If you have any 'Suggestions, Comments, Compliments or Complaints' about any of the Support Groups listed on the Alopecia UK website then you can let us know by clicking here
. The information will be used by Alopecia UK to help us understand what works and what doesn't in order that we can support and advise group leads more effectively and develop the Alopecia UK support group network.