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Direct Link To This Post Topic: London Alopecia BIG weekend!
    Posted: 17/May/2014 at 4:47pm

London Alopecia BIG weekend!


Registration now available!

Registration link - www.aukbigweekend.eventbrite.co.uk

Saturday 13th September 2014

Our theme for 2014 is 'Get Involved!'  Be sure you don't miss out and 'Get Involved' in our BIG weekend!  We'll have a series of things for you to get involved in across the weekend however Saturday is the BIG day and you'll need a ticket to get in.  Come along to hear the latest about all things relating to alopecia as well as have the opportunity to take part in this years Alopecia Awareness event for Alopecia Awareness Month (September).  

The event is suitable for all ages however we have three types of tickets. Some are very limited so please do book quickly to avoid disappointment.

Ticket Types:

  • General Admission (Aimed at adults)

Admission to the main conference hall as well as the information sharing exhibition hall. 

  • Young Person (age 13 - 18)

Admission to a Young Person's Participation event as well as the information sharing exhibition hall.

  • Children's Workshop Ticket (age 12 and under)

Admission to a Children's workshop as well as the information sharing exhibition hall (with the supervision of a parent/guardian).

Some frequently asked questions:

What is the day about?

The day is about sharing information, bringing people together & getting involved (participation) in the charity and all things alopecia!  Alopecia UK has built up some good contacts over the years who have agreed to do some talks and share relevant information with you.  We also find that those who have alopecia can often be the experts having picked up various tips and useful products over the years!  The exhibition hall will therefore be full of useful bits of info that we've discovered over the years as well as facilitating the sharing of these things amongst yourselves.  For example headscarves -  How do you tie them so they look good?!  Eyebrows - what are the options for men and women?  Feedback from previous events suggest people want more time to chat to others so there will be plenty of time for that too.

 What about the awareness activity?  I want to take part in a flash mob like last year!

We are facilitating an awareness event.  It won't be the same as last year but it will be carried out at the end of the day and involve a large group of us going to a well known landmark and turning a few heads!  It will then be filmed in order to share on social media.  We've added the extra element of the information sharing part to the day because so many people travelled in from all over the UK last time we wanted to give a bit extra!  Please state whether you will be taking part in the awareness event on the booking form so we have an idea of numbers. 

What else will you be doing?

Well as is usual with us here at Alopecia UK we do get carried away and like to just have a bit of fun!  The Saturday night is Karaoke night where you can get yourself a meal and I'm sure for those that want to we'll then go on for drinks afterwards.  Some of us here at Alopecia UK enjoy raising awareness in large numbers and think it would be pretty cool to have a group of lovely baldies raising awareness in the pubs and clubs of London!  On the sunday we've had several ideas and you can choose preferred options from going to an outdoor swimming pool, going on a walk round London, or going shopping (all of the above including a bit of awareness raising and taking our 'Army' of Blue t-shirts on tour!).  All the extras planned will be more informal and relaxed with some being finalised nearer to the time when we see what the weather is like. We will be doing other activities though!  So if you fancy making a weekend of it there will be other things to do (we know lots of you wanted it to be a full weekend again!).  Just register your interest in the additional questions bit to be kept informed. 

I'd like to stay over.  Where can I stay?

For those coming on their own we have booked some rooms in hostels.  Last year this worked well and was a good opportunity for meeting new people.  Please register your interest and we will facilitate where we can.  Numbers will be limited though and we cannot guarantee you a place.  Rooms will be kept to same S*x only.  For those of you in pairs/groups and looking to book accommodation, as a general guide the conference takes place near Kings Cross and the saturday night event will take place near Oxford Circus/Soho area so depending on your plans we recommend finding somewhere near one of them. 

Is there an age limit to enter the event?

No however young person tickets are strictly for 13 - 18 year olds and the the children's workshop is only for age 12 and under.  Anyone can go in the conference hall however it might be a bit boring for children to be honest.  Parents can go in the childrens workshop to help get them settled in but the idea is that we entertain the children so that parents can go and sit in the main conference hall.

What are my transport/parking options getting to the event?

Please take at look at the venue's own website...

http://www.resourceforlondon.org/contact-us/how-to-find-us

The venue is only two tube stops from Kings Cross so you are probably best getting public transport or a taxi as parking might be a bit difficult/expensive in London.  

Do I have to bring my paper ticket to the event?

Yes please print and bring your ticket with you to the event.  You will not be allowed entry without it.

 What is the refund policy?

Unfortunately we will not be giving refunds. 

Where can I contact the organiser with any questions?

You can contact the charity on email at info@alopeciaonline.org.uk or via phone call/text at 07763 293 687.

Further information about ticket types:

General Admission

Mainly aimed at adults this ticket includes access to the conference hall and a series of informative short talks, an information sharing arena that will be packed full of useful advice in relation to alopecia, lunch and refreshments.

Short talks to include:

An update on current research by Dr Gill Westgate (President of the European Hair Research Society)
    
An update on Treatments by Dr Andrew Messenger (Research Lead Sheffield Hallam)
    
Whats Hair got to do with Dermatology? by Paul Farrant (Chair of British Hair and Nail Society)
    
All things Wigs, Where to start?! by Karena Moore Millar (Product Designer with specialist knowledge in wig technology) and Emma Hirst (Author of blog 'Diary of a Self Confessed Wig Addict')
    
Alopecia: a psychological perspective - speaker to be confirmed

Other talks to be confirmed and are subject to change.  There will also be question and answer sessions where you can put your questions to the speakers.  If there are talks that you don't want to sit in you have the option of exploring the information sharing arena and chatting with others.

The talks will be very informative in order to give you the information you need to be better informed about your alopecia and answer some of your questions.  However we hope that it will also raise some questions for you as a big part of the day will be your participation in the Hair loss Priority Setting Partnership (PSP) in order to help shape the future of hair loss research.  In September and October we will be rolling out the data collection part of the Hair loss PSP.  A PSP is a popular method for directing research.  The PSP's are facilitated by the James Lind Alliance who are a body of the National Institute for Health Research.  The purpose of the PSP is to find the top 10 unanswered questions which will help with future research being carried out.  This is your chance to Get Involved and have your say on the shaping of future research and where it should be being directed.

Young Person (age 13 - 18)

Ticket includes:

Access to a young person's participation event as well as the exhibition hall.  They may go in the conference hall if they so wish.

We get a lot of young people getting in touch and asking to be involved.  We know there are gaps in services for young people of this age and the charity want to address this gap.  However we first need to find out what young people want from us!  This participation event is a good opportunity for young people to meet others however its also a good opportunity for young people to put forward their ideas about how they would like to see the charity develop for them.  From this event we will be starting a steering group of young people who will be a bit more hands on and involved in working on and developing future projects.  As part of the day there will also be a Wig Design workshop by product designer Karena Moore Millar.  This is to showcase a new workshop that can be delivered in schools to help raise awareness and understanding of alopecia.

Please note:  Space for this is limited.  For those under 16 parents/guardians will need to be in attendance but with a general admission ticket which means that they are in the room next door.  As a preference and due to space being limited young people would attend the conference on their own.  The day will be designed to be inclusive and get young people talking to each other.  However we understand some young people might be a little nervous so for those who would prefer to bring someone in to the participation event with them they may bring a friend/sibling (a ticket must be purchased).  Those attending must be between 13 and 18 years old.

Children's Workshop (age 12 & under)

Access to the childrens workshop.  Access to the exhibition hall (with a parent upon collection from the room).

A fun workshop it will be an opportunity to meet with other children.  Parents may come in and out of the room but the idea is that they can go in to the main conference hall (with a general admission ticket) while children take part in a fun workshop.  It will include a workshop by children's author Sue Hampton to showcase a workshop that can be used in schools to help raise awareness and understanding of alopecia.  The room will be managed by workers and children will be supervised at all times.  If children wish to go out of the room in to the main exhibition hall they must do so with their parent/guardian.  This ticket type is free but a deposit must be paid which will be returned on the day.  Please note this ticket type is extremely limited.

Don't delay register today

www.aukbigweekend.eventbrite.co.uk


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