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Francesca View Drop Down
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    Posted: 14/September/2017 at 2:13pm
I have just joined this Forum and want to connect with others on here.
I was diagnosed with Alopecia back in November 2015. My hairdresser made me aware of this and advised me to go and see my Doctor. I have a small round patch on my crown, which originally was about the size of a fifty pence piece. Although it has got slightly larger after this amount of time my hair is not growing back.
My Doctor did blood tests and when received back, advised me that it was probably down to my age ( I have gone through the Menopause) or stress ( My Mother had passed away earlier that year).
I know my symptoms are not as severe as some people have, but it has knocked my confidence somewhat when out in public. After reading many messages on here, I have decided to go back to my Doctor's to see if he can refer me to a Dermatologist, who hopefully can give me some advice or information on this. I don't know if my hair will grow back or not, but I feel relieved at having found this Forum and being able to communicate with other people who understand.
I have my Doctor's appointment tomorrow, so hopefully I will feel more confident/positive about my Alopecia.


 
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Francesca View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 02/October/2017 at 9:22pm
Hello there.
Just a quick update.
I saw my Doctor today and was told there was nothing in my blood test results to give the reason for my hair loss. He is going to refer me to a Dermatologist, but said they may not be able to do much.
I am not sure what to expect when I go to the Dermatologist, whether my hair will grow back or not or whether it is hereditary. All I really want to feel is that I can be in control of this situation and feel more confident.
I will keep in touch.
Francesca.
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Francesca View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 09/November/2017 at 3:42pm
Hello there.
Thought I would  update my situation.
I had my first appointment with a Dermatologist on Monday. First he wanted to know when my hair loss started and also asked me about my family history and if my hair loss could be hereditary. He then went on to examine my scalp.  I then had a biopsy done on my scalp (which I was a bit nervous about), but it was not as bad as I thought. I now have to wait 3/4 weeks for the result. He also said that the hair may not grow back, which I had been thinking along the same track, so not too surprised there.
I was given a prescription for Mometasone furoate 0.1% w/w ointment and to use this once a day for 6 weeks. If anyone has experience of using this could they let me know, as I am not sure what to expect. I am feeling a bit more confident now that I have seen someone and hope the result of the biopsy will help me to understand this condition more.
I will keep you posted.
Francesca.


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Post Options Post Options   Thanks (1) Thanks(1)   Quote textaholic Quote  Post ReplyReply Direct Link To This Post Posted: 10/November/2017 at 10:35pm
Hi Francesca 🙂,
Glad you are feeling better since going to the dermatologist.
Can we ever control this disease?....
In my opinion , no, but we can stop it getting the better of us.
Hope you get some sort of answers when you get results 🤞.
All the best,

Sarah x
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Francesca View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 11/November/2017 at 2:30pm
Hi Sarah,
thank you for your reply.
Just being able to be in touch with people like yourself, who are going through similar symptoms and roller coaster emotions that this causes is a great help. I have made my mind up that I will not let this get the better of me. 
Will keep in touch.   

Francesca. x
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Francesca View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 11/December/2017 at 2:39pm
Hello there.

I have seen the Dermatologist today and he told me that the result of my biopsy was that I have Lichen Planopilaris or another name for Scarring Alopecia. He also told me that because of this my hair will almost certainly not grow back. He has given me a prescription for Dermovate Lotion which is a stronger steroid than the Mometasone which I am currently using.  I did ask him what this could do and was told it may be able to stop the Scarring Alopecia from spreading. He is going to refer me onto the hospital, as they may be able to help with further treatment.
I had a feeling that my hair would not grow back, but at least now I know it helps me to come to terms with the situation, devastating though it is.
If anyone has any information about this or is going through the same situation, please contact me as
I know there are some very helpful people on this forum.
Now I have to go forward with this and try to keep positive, although it is not always easy to do so.
Thank you for listening to me.
Francesca
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mariyah Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 2:06pm
Hi there,

I just wanted to ask how things are going. I have Alopecia, though not the scarring kind I was given Dermovate as a topical steroid. Long story short I'm no longer visiting the hospital for treatment.
It's tough for anyone to go through, but hey it's a journey to to embark on.

I just want to say feel free to contact me, I'll gladly chat with you.

Take care,
Mariyah
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Francesca View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Francesca Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 2:31pm
Hi Mariyah,

thank you for your reply.

Well, I am using the Dermovate lotion most days, but am feeling sceptical about it helping to control my Alopecia.
I have now got an appointment at my local hospital, but not until the beginning of May. So at the moment I shall just carry on with the Dermovate ( don't know if it will last until then).
Can you tell me how long you used the Dermovate for and if it helped at all?
I really don't know what the hospital will do next treatment wise, but will try and keep optimistic about it all.
It would be nice to keep in touch.

Take care
Francesca
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Mariyah Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 3:11pm
Hi,

I understand, if it gives you a little confidence, I had not noticed any adverse effects from using Dermovate. On occasion my scalp would feel a little sensitive, but nothing that didn't settle with time. Maybe you could ask for a repeat prescription to keep you going until the next appointment?

I used Dermovate when I was around 12 years old. My alopecia was a large patch at the back of my head and on the side of my head. I would say I used Dermovate every evening for a year and the patches did see growth. The only thing was the hair that grew back was coarser and felt fake, if that makes sense? But nonetheless, it grew back, at first feeling fuzzy on my scalp. In all honesty I did stop using Dermovate because the hair grew back and I could conceal any new spots.

Fast forward when I was maybe 16, the alopecia became more apparent and I restarted Dermovate, and again I grew back the 'fake' feeling hair. (Woohoo!). The hair that grew back remained short, not longer than 10cm.
Again, I stopped using Dermovate after 6'ish months.

Finally I am now 21 years and in the past year and a half my alopecia has spread a lot, I did use Dermovate for a month or so, but my alopecia generally became more severe where its affected my eyelashes and eyebrows. I somewhat gave up using Dermovate because I visited the hospital and they recommended new treatment, which seemed a little too harsh for my liking.

So I would say Dermovate helped me with the small spots and slightly larger patches. In my honest opinion, I would say to continue with the Dermovate until you visit your Dermatologist, but you know best.

I hope the information helps x
Mariyah
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 2westies Quote  Post ReplyReply Direct Link To This Post Posted: 16/January/2018 at 4:07pm
Hi Francesca

Hi there

Yes there is lots of information on the forum and there are lots of people all in the same situation.

I have been using dermovate since before Christmas which was prescribed by my dr on the trichologists advice. I have frontal fibrosing alopecia, as diagnosed by trichologist which I think is correct, and suffer with the itching and creepy Crawley feeling in my hair. I think the dermovate has helped a little but not sure if it has helped with the hair loss. I am on my second bottle of dermovate and will need another one before long. I would say I get through a bottle in five weeks as tend to apply it in the morning and on a night if I have bad itching. There have been days when I have felt there is no need as my scalp has felt good.

You mention you had a biopsy I would be interested to learn where abouts they took it from?

Like you I have gone through the menopause (without any issues). I am waiting for an appointment with the dermatologist, but feel I may not get one as my dr mentioned going privately to speed things up and I don’t think they want to pay for any possible treatment. Would like to see dermatologist soon as I’d like to start planning what the options are as have finished work and looked forward to doing all those things that have not had time to do and can’t seem to put my mind to them.

I am also using minoxidil on the front of my hairline but am getting impatient as not really seeing results of applying this. This was recommended by trichologist.

I will be attending a local meeting to hopefully meet others in a similar situation and learn first hand about this disease. There should be a group near you a list is in the support and advice section.

I hope you find my use of the dermovate helpful. X
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