Please get in touch with Elena ahead of a meeting and let her know if you intend to go along.
Elena's link with alopecia:
Elena has had alopecia for over nineteen years. She started out suddenly with Alopecia Universalis and after five years she had significant regrowth. Over the following fifteen years she had alopecia areata that would come and go however in summer 2016 her hair has started to fall out much more rapidly and Elena is wearing a wig again although will sometimes go bald if swimming in the sea and wear caps and scarves at the gym. From Elena:
"Having had Alopecia for many years and following a recent relapse, I decided itís time to set up a Jersey group. 'Alopecia Support Jersey' is an informal group that will typically meet on the 3rd Monday of each month. You will be offered support and friendship and experience the benefits of meeting and sharing with others affected by Alopecia. Later on we may organise some workshops, guest speakers and even a little fundraising for Alopecia UK. Watch this space!"Need Advice or Support Outside of the Group Meetings?
The main role of support group leads is to facilitate, and answer questions about, the group meetings. Some may offer additional support and you can see what is on offer from Elena below:
- Elena does not have her telephone number advertised but is happy to provide a listening ear at a time arranged via email.
- Elena is happy to receive support questions from those in her local area and will answer to the best of her ability based on her own knowledge and experiences. Please be aware that any questions Elena is unable to answer will be sent on to staff at Alopecia UK.
Please note that all of our support group leads are volunteers and do this in their spare time. As such please allow up to a week for replies to emails. The majority of group leads are not trained health professionals and will be helping from the standpoint of being someone who is affected by alopecia themselves and wanting to reach out and help others.
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.
Suggestions, Comments, Compliments, Complaints?
If you have any 'Suggestions, Comments, Compliments or Complaints' about any of the Support Groups listed on the Alopecia UK website then you can let us know by clicking here
. The information will be used by Alopecia UK to to help us understand what works and what doesn't in order that we can support and advise group leads more effectively and develop the Alopecia UK support group network.