The meetings may take place in different venues. Usually it is a private room but sometimes the group will meet in a cafe or pub. As such refreshments are sometimes free of charge and sometimes available to buy, depending on the venue.
Please get in touch with Caroline ahead of a meeting and let her know if you intend to go along.
Caroline's link with alopecia:
Caroline has had Alopecia for 6 years having started with it at the age of 59. From Caroline:
"It was a shock to develop alopecia, but I think my age has helped me cope with it. At the
start I knew nobody with Alopecia, but I realised that I must seek out
others with the condition, in order to come to terms with it. However
kind and supportive one's friends and colleagues are, there is
absolutely no substitute for getting together with those who simply 'get
it'. The group meets about four times a year. We discuss our Alopecia, share our
experiences, share tips on coping with the condition, and give mutual
support."Need Advice or Support Outside of the Group Meetings?
main role of support group leads is to facilitate, and answer questions
about, the group meetings. Some may offer additional support and you
can see what is on offer from Caroline below:
- Caroline has her telephone number advertised and is happy to provide a listening ear via telephone call if someone phones between 9am and 5pm.
- Caroline is happy to receive support questions from those in her local area and
will answer to the best of her ability based on her own knowledge and
experiences. Please be aware that any questions Caroline is unable to
answer will be sent on to staff at Alopecia UK.
note that all of our support group leads are volunteers and do this in
their spare time. As such please allow up to a week for replies to
emails. The majority of group leads are not trained health
professionals and will be helping from the standpoint of being someone
who is affected by alopecia themselves and wanting to reach out and help
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?
you have any 'Suggestions, Comments, Compliments or Complaints' about
any of the Support Groups listed on the Alopecia UK website then you can
let us know by clicking here
Feedback is always appreciated. The information will be used by
Alopecia UK to to help us understand what works and what doesn't in
order that we can support and advise group leads more effectively and
develop the Alopecia UK support group network.