Please get in touch with Vicky and Rachel ahead of a meeting and let them know if you
intend to go along as they need to keep track of numbers.
Vicky's link with alopecia:
Vicky's alopecia started whilst in university. She lost patches of hair which then grew back however at the age of twenty-four Vicky lost all her hair with a diagnosis of alopecia universalis. Her dad also has alopecia universalis and lost his hair at the age of twenty-one.
"The meetings in Liverpool are casual and friendly. We meet in cafes around Liverpool and everyone has lots of positive support and advice to offer. I really enjoy the meetings!"Rachel's link with alopecia:
Rachel has had alopecia for over fifteen years and currently has alopecia universalis.From Rachel:
"I've suffered with Alopecia since the age of 15. Although at first it
was limited to small patches in my eyelashes and eyebrows, and was
barely noticeable. I began developing more patches in March 2015. Within
a month I had lost all my hair. Before attending my first support group I was nervous and unsure of what
to expect, but after my first meeting I felt so reassured to know that
there were others who knew exactly how I was feeling. I'd hope that
members can find support and reassurance from our group and also share
and discuss their experiences and Alopecia journeys if they so choose."Need Advice or Support Outside of the Group Meetings?
main role of support group leads is to facilitate, and answer questions
about, the group meetings. Some may offer additional support and you
can see what is on offer from Rachel
- Rachel has her
telephone number advertised and is happy to provide a listening ear via
telephone call if someone phones (currently anytime apart from between 8pm-10pm Mon and Wed - subject to change).
- Rachel is happy to receive support questions from those in her local area and
will answer to the best of her ability based on her own knowledge and
experiences. Please be aware that any questions Rachel is unable to
answer will be sent on to staff at Alopecia UK.
note that all of our support group leads are volunteers and do this in
their spare time. As such please allow up to a week for replies to
emails. The majority of group leads are not trained health
professionals and will be helping from the standpoint of being someone
who is affected by alopecia themselves and wanting to reach out and help
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?
you have any 'Suggestions, Comments, Compliments or Complaints' about
any of the Support Groups listed on the Alopecia UK website then you can
let us know by clicking here
Feedback is always appreciated. The information will be used by
Alopecia UK to to help us understand what works and what doesn't in
order that we can support and advise group leads more effectively and
develop the Alopecia UK support group network.