The regular meetings in the Malborough Arms have a private space within the pub which is protected from view with curtains. Refreshments are available to buy. London support group meetings are typically informal gatherings - a chance to mix and talk to others about your experiences. Below you can find some extra information from Amy about individual meetings:
Saturday 22nd July 2017 - Picnic and Swim
This will be at Hampstead Heath Swimming Ponds from 12pm. Bring your own picnic, and (if you've got them) other picnic essentials such as blankets, chairs, games, music speakers! From Amy,
"For those who fancy it, bring your swimming stuff and we can enjoy the Hamptead Heath Swimming Ponds in what I am optimistically predicting will be a LOVELY sunny day! It costs £2 to swim. There will be no pressure to swim, and anyone who does can wear wigs,scarfs or bare all if you feel comfortable - it is completely up to you! Everyone is welcome, friends, family and children! Lets start the summer off in style!"
Please get in touch with Amy ahead of a meeting and let her know if you
intend to go along as she needs to keep track of numbers.
Amy's link with alopecia:
Amy was first diagnosed with Alopecia Areata when she was 10 years old. Amy found growing up with Alopecia challenging at times but learnt very quickly that it was not going to stop her from doing any of the things she wanted to do (which was good since she just wanted to surf and horseride!). Growing up she learnt a lot about personal strength and always thinking about others, which she now appreciates and thanks her alopecia journey for. She has had some experiences of re-growth but right now has Alopecia Universalis, losing all hair, including eyebrows and eyelashes. She attended the support group for the first time two years ago, and was amazed by the strength and support she drew, and also offered, within the meetings. Her confidence with alopecia has never been so high, and she thanks all the people she has met since she started attending. She was both proud and honoured when she was asked to lead the group.
"It is most important for me to say that EVERYONE is welcome to join this group - all types of alopecia, different stages and types of hair loss, men, women, and partners/parents of people with alopecia. In addition, how you use the group is also entirely up to you - no-one is forced to speak if you would rather listen. Some people attend every session, others I might see once a year, and others only attend once to get what they need. All versions of support is absolutely fine, make this group what you want it to be for you! Support groups are often run in the Malborough Arms - a pub accessible by tube stations Warren Street and Goodge Street. We are very fortunate that we are offered the private back room free of charge (which in Central London is an absolute win) so anything we can offer back in terms of food and drinks ordered is always appreciated. I try and offer a variety of events for the support group from support meetings to fun activities such as yoga, walks and pub quiz nights. I welcome any suggestions for feedback to make this group as great as it can be."Need Advice or Support Outside of the Group Meetings?
main role of support group leads is to facilitate, and answer questions
about, the group meetings. Some may offer additional support and you
can see what is on offer from Amy below:
- Amy does not have her telephone number advertised but is happy to provide a listening ear via
telephone call at a time arranged via email.
- Amy is happy to receive support questions from those in her local area and
will answer to the best of her ability based on her own knowledge and
experiences. Please be aware that any questions Amy is unable to answer will be sent on to staff at Alopecia UK.
note that all of our support group leads are volunteers and do this in
their spare time. As such please allow up to a week for replies to
emails. The majority of group leads are not trained health
professionals and will be helping from the standpoint of being someone
who is affected by alopecia themselves and wanting to reach out and help
You can always contact Alopecia UK head office
direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?
you have any 'Suggestions, Comments, Compliments or Complaints' about
any of the Support Groups listed on the Alopecia UK website then you can
let us know by clicking here
Feedback is always appreciated. The information will be used by
Alopecia UK to to help us understand what works and what doesn't in
order that we can support and advise group leads more effectively and
develop the Alopecia UK support group network.