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Leeds, West Yorkshire

This group was set up at the beginning of 2013 and is well established now.  The following are welcome to attend the meeting:
  • Those with all types of alopecia age 14 and over (male and female)
  • Friends/partners of those with all types of alopecia (accompanying someone with alopecia)
  • Parents of children with all types of alopecia
Please note that those age 14-17 must be accompanied by someone age 18 or over.  This group is not suitable for those under 14.  If you have a child under 14 and are looking for support please contact the separate Yorkshire Children Support Group.

You can find out a bit more about the Leeds support group in this 'Support Group Spotlight' article.


Date Time Location
Monday 13th November 2017 18.30 Headingley Room, Queens Hotel, Leeds, LS1 1PJ
The Leeds support group is run by Amy who is also Alopecia UK's Communications & Fundraising Manager. The meetings take place in a private room and tea/coffee is provided.

Support group contacts

Amy Johnson

Amy Johnson

Phone: 07983 810490


Please get in touch with Amy ahead of a meeting and let her know if you intend to go along as she needs to keep track of numbers to ensure everyone has a seat.

Amy's link with alopecia:

Amy first spotted two small patches in October 2007 (age 24). The two small patches quickly re-grew but she then developed alopecia universalis in 2010.  Over the last couple of years her hair has started to grow back a bit.  Any re-growth is patchy and prone to fall out again.  Amy is comfortable with her alopecia these days but would still love for her hair to make a full return.  You can read more about Amy here.

From Amy:

"Although I am at ease with my hair loss, I remember vividly how hard my first year with alopecia was. It's for this reason that I am passionate about helping others with alopecia.  We have a comfortable and private room in the Queens Hotel Leeds, which is attached to Leeds train station. The proximity to the station means it's an ideal location for people travelling from the wider area.  We have group members who travel from York, Sheffield, Harrogate, Skipton, Wakefield and Halifax (and lots of places in between!).  I look forward to meeting you!"

Need Advice or Support Outside of the Group Meetings?
The main role of support group leads is to facilitate, and answer questions about, the group meetings.  Some may offer additional support and you can see what is on offer from Amy below:
  • Amy has her telephone number advertised and is happy to provide a listening ear via telephone call at a time pre-arranged via email.
  • Amy is happy to receive support questions from those in her local area and will answer to the best of her ability based on her own knowledge and experiences.  

Please note that all of our support group leads are volunteers and do this in their spare time.  As such please allow up to a week for replies to emails.  The majority of group leads are not trained health professionals and will be helping from the standpoint of being someone who is affected by alopecia themselves and wanting to reach out and help others.

You can always contact Alopecia UK head office direct during office hours should you have any queries that need a more urgent response.

Suggestions, Comments, Compliments, Complaints?
If you have any 'Suggestions, Comments, Compliments or Complaints' about any of the Support Groups listed on the Alopecia UK website then you can let us know by clicking here.  Feedback is always appreciated.  The information will be used by Alopecia UK to to help us understand what works and what doesn't in order that we can support and advise group leads more effectively and develop the Alopecia UK support group network.

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